In this video, Gesna Clarke shares her health journey with amyloidosis, a rare genetic condition caused by mutations in certain genes that lead to the abnormal production of amyloid proteins.
Kate and Logan's Patient Story: Duchenne Muscular Dystrophy
In this emotional video, Kate Vander Weele shares her family’s journey as her 12-year-old son Logan battles Duchenne muscular dystrophy, a rare and fatal genetic disease that causes progressive muscle loss. She recounts his early diagnosis, the daily challenges of his declining mobility, and the emotional, financial, and medical struggles her family faces. Kate calls for greater awareness, faster access to treatments, and stronger support so children like Logan can have the quality of life and future they deserve.
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In this compelling and educational video, Lindsey Sullivan shares her personal journey with alopecia areata, offering valuable insights into the emotional and clinical aspects of living with this autoimmune condition. As both a patient and advocate, Lindsey sheds light on the challenges of diagnosis, treatment decisions, and navigating the healthcare system.
In this video, Sean Riley from New Hampshire shares his health journey with amyloidosis, a rare genetic condition caused by mutations in certain genes that lead to the abnormal production of amyloid proteins.
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