Patient Conditions/Disease States

In this episode of Unscripted, we talk with Marty Acevedo, MS, RD, Patient Advocate and President & Board Chair of the Parkinson’s Association of San Diego. Marty shares her personal journey with Parkinson’s disease—from a delayed diagnosis to managing symptoms, treatment decisions, and the impact on daily life. She discusses the importance of individualized care, the essential role of caregivers, and the value of evidence-based resources. Marty also highlights her involvement in the Michael J. Fox Foundation’s Parkinson's Progression Markers Initiative (PPMI) research study and offers perspective on emerging advances and potential disease-modifying therapies that may shape the future of Parkinson’s care.

In this episode of Unscripted, AMCP speaks with Sheena Crosby, PharmD, BCGP, Inflammatory Bowel Disease Clinical Pharmacist at the Mayo Clinic in Florida. Sheena breaks down the American College of Gastroenterology’s (ACG) updated guidelines for ulcerative colitis and Crohn’s disease, highlighting major shifts in treatment strategy, including the move toward earlier use of advanced therapies and updated goals focused on symptom control, mucosal healing, and sustained remission. She also outlines the critical payer considerations emphasized in the guidelines—from eliminating unnecessary step-therapy requirements to ensuring timely access to induction and maintenance therapy—changes that have direct implications for patient outcomes and health-system performance.

In this emotional video, meet Kate Vander Weele who shares her family’s journey as her 12-year-old son Logan battles Duchenne muscular dystrophy, a rare and fatal genetic disease that causes progressive muscle loss.

Meet Kevin Wake, a 57-year-old sickle cell warrior from Kansas City, who shares his personal journey living with this lifelong genetic blood disorder.

Meet Nathan Mermilliod who shares his experience living with severe hemophilia B, a rare bleeding disorder that requires lifelong prophylactic treatment to prevent dangerous internal bleeds.

Meet Ami Gopalan, who shares her journey living with IgA nephropathy, a rare autoimmune kidney disease that attacks the kidneys.

In this episode, we talk with Franck Rahaghi, MD, MHS, Executive Director of Cardiopulmonary Global Medical Affairs at United Therapeutics, about pulmonary hypertension in interstitial lung disease (PH-ILD), a serious and often under-recognized condition at the intersection of two progressive diseases. We discuss the importance of early recognition, the role of multidisciplinary care, emerging treatment options, and what patients, clinicians, and payers should know to improve outcomes.

In this episode, we talk with Arash Mostaghimi, MD, MPA, MPH, Vice Chair of Clinical Trials and Innovation, Brigham & Women's Hospital Department of Dermatology. Dr. Mostaghimi discusses alopecia areata—an autoimmune disease that causes patchy or complete hair loss—its inflammatory basis, how severity is measured, and the profound psychosocial impacts on patients and families. He also reviews the latest FDA-approved therapies, evolving treatment guidelines, and what patients, clinicians, and payers should know as new options reshape care. Interested in being a guest or know an expert? Let us know! https://www.amcp.org/podcast https://amcp.org/corporate-opportunities

Meet Gesna Clarke who shares her health journey with amyloidosis, a rare genetic condition caused by mutations in certain genes that lead to the abnormal production of amyloid proteins.

Meet Lindsey Sullivan who shares her personal journey with alopecia areata, offering valuable insights into the emotional and clinical aspects of living with this autoimmune condition. As both a patient and advocate, Lindsey sheds light on the challenges of diagnosis, treatment decisions, and navigating the healthcare system.

Hemophilia is a disorder where the blood does not clot properly. This is due to the body not having enough blood-clotting proteins. This can lead to spontaneous bleeding as well as bleeding following injuries or surgery. They are two types of hemophilia. Hemophilia A and Hemophilia B. Hemophilia A is caused by the lack of low level or clotting factor VIII. Hemophilia B is caused by the lack or low level of clotting factor IX.

Chronic Kidney Disease is when the kidneys gradually get damaged over time and the kidneys are unable to complete functions such as removing wastes from your body, maintain blood pressure, and keeping your bones healthy.