In this emotional video, Kate Vander Weele shares her family’s journey as her 12-year-old son Logan battles Duchenne muscular dystrophy, a rare and fatal genetic disease that causes progressive muscle loss.
Gesna’s Patient Story: Amyloidosis
In this video, Gesna Clarke from California shares her health journey with amyloidosis, a rare genetic condition caused by mutations in certain genes that lead to the abnormal production of amyloid proteins. These proteins misfold and deposit in tissues and organs, disrupting their normal function. Hear from Gesna how this condition has impacted her family and how she plans to not let it halt her life.
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In this compelling and educational video, Lindsey Sullivan shares her personal journey with alopecia areata, offering valuable insights into the emotional and clinical aspects of living with this autoimmune condition. As both a patient and advocate, Lindsey sheds light on the challenges of diagnosis, treatment decisions, and navigating the healthcare system.
In this video, Sean Riley from New Hampshire shares his health journey with amyloidosis, a rare genetic condition caused by mutations in certain genes that lead to the abnormal production of amyloid proteins.
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