In this video, Sean Riley from New Hampshire shares his health journey with amyloidosis, a rare genetic condition caused by mutations in certain genes that lead to the abnormal production of amyloid proteins.
Sean’s Patient Story: Amyloidosis
In this video, Sean Riley from New Hampshire shares his health journey with amyloidosis, a rare genetic condition caused by mutations in certain genes that lead to the abnormal production of amyloid proteins. These proteins misfold and deposit in tissues and organs, disrupting their normal function. Sean is a speaker and advocate for the Amyloidosis Speaker Bureau and explains the disease burden of ATTR‐CM from a patient perspective and the value of treatments for amyloidosis to improve the quality of life for patients with this hereditary condition.
This recording was produced as part of a continuing pharmacy education activity entitled, Rare Disease Spotlight: Transthyretin Amyloidosis Cardiomyopathy (ATTR‐CM) Disease Burden, Unmet Needs, and Treatment Advances, funded by an independent medical education grant by BridgeBio.
View program on AMCP Learn.
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