JMCP Findings - Impact of Mental Health in Persons Living with Rare Disease

FINDINGS FROM THE AMCP MARKET INSIGHTS PROGRAM | July, 2024

Summary

People with rare diseases often have mental health challenges related to their health care. These vary by disease, but there are common issues that make it difficult for individuals and their families, including delays in getting diagnosed, not knowing what will happen in the future, having limited treatments, and facing financial difficulties. Health care organizations can help by supporting collaborative care models, helping patients see the right doctors to get treatment, and measuring how well programs or treatments work.

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